Online Survey Reveals Ulcerative Colitis Patients More Worried About Disease Complications Than Drug Side Effects

Online Survey Reveals Ulcerative Colitis Patients More Worried About Disease Complications Than Drug Side Effects
A survey to help in the development of a web-based, multimedia treatment decision aid for patients with ulcerative colitis showed that patients are more worried about complications of their disease than the risk of experiencing side effects of the medication they use. The findings were published in the journal Inflammatory Bowel Diseases, titled “Patients with Ulcerative Colitis Are More Concerned About Complications of Their Disease than Side Effects of Medications.” In 2014, Emmi, a provider of interactive patient engagement solutions, joined forces with researchers at the Dartmouth-Hitchcock Medical Center (DHMC) in New Hampshire to survey ulcerative colitis patients in the U.S. and Australia and assess the issues that were important to them, and if patients were interested in participating in treatment decisions. Of the 460 patients who responded, 98 percent of whom indicated that they wanted to know more about their disease than just basic facts, and 51 percent stating they want to have an in-depth understanding. Many patients (87 percent) wanted to take part in treatment decisions. The survey also revealed that while 37 percent admitted their greatest concern was the risk of colon cancer and 29 percent feared the need for an ileostomy, only 14 percent listed drug side effects as their main concern, showing that complications of their disease was the main concern of patients. "As clinicians, we spend a great deal of time helping patients with ulcerative colitis understand the risks and side effects of the medication options,” Corey Siegel, associate professor of medicine and director of the Inflammatory Bowel Disease Center at Dartmouth-Hitchcock Medical Center, said in a news release. “However, these findings help us recognize th
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