Lately, my health has not been the best, and it’s really been a struggle just to wake up in the morning. I’m exhausted, and no matter how much sleep I get, I always wake up tired. This is my IBD.
Although my colon, rectum, and even appendix have been removed, my life is still very complicated. My body is still very complicated. This is just another reminder that surgery is not a cure. Although many physicians and medical professionals may present it as such, sadly, it’s not.
I am so grateful for my J-pouch and honestly, I wouldn’t have life any other way (at this time). But unfortunately, it’s not enough. It has given me a 360-degree turnaround, a better quality of life, the ability to actually live life. But it’s not enough. Although my colon is gone, I unfortunately still suffer from inflammation and extraintestinal manifestations. We still need a cure.
Through everything, I try to stay positive. I try to hold my head up and keep a positive outlook on my condition and my life in the future. If I am having trouble staying positive, I use things like affirmations, games, and even Pinterest to get me through challenging times.
Although dealing with any complications associated with any illness can be hard, we have to remember to stay positive. I of all people understand how life-consuming it can get, and how easy it can be to become depressed. I’m in no way saying you should hide what you feel — pain is meant to be felt. But we can’t allow ourselves to dwell on those negative emotions.
Things you can do to boost your spirits
If you need something to do to boost your spirits, try occupying your mind. Here are a few things I like to use to distract my busy mind.
Head Space is a great and free app I’ve used to meditate and just relax.
If you like to be active when you’re feeling low, try the Charity Miles app. As you walk, run, or bike, you earn money for a charity of your choosing. Giving back always puts me in a good mood.
If you prefer something simple, one of my favorite games to play on my phone is Move The Box. The game doesn’t rush you, and essentially all you are doing — exactly as the title says — is moving boxes. I have used this game to occupy my mind in so many uncomfortable situations from road trips to ride planning.
I also use Pinterest as a simple way to occupy my mind. From searching positive affirmations and quotes to the latest home decor, I know I can count on Pinterest to have what I need.
Don’t like those options?
If you’d rather talk out your problems, I highly suggest checking out my column from last week, How To Meet Others With IBD. You’d be surprised where and how you can meet people who can relate.
So what about you? What are some ways you try to keep a positive attitude during a flare of IBD complication? Let’s discuss in the comment section.
Note: IBD News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of IBD News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to IBD.