How to Meet Others with IBD

How to Meet Others with IBD
I was diagnosed with ulcerative colitis in 2010, and at the time, I didn't know anyone with my condition. Because I was constantly flaring, I couldn't do things that other people my age were doing. I declined invites so often that eventually my friends stopped asking altogether. Sure, I could have explained my situation to them and hoped they understood, but we were young. I didn't want to limit my friends the way I had already limited myself. That just wasn't fair to them. At the end of 2014, I had my colon removed after years of having an active flare and never achieving remission. I was so bored after surgery, because although I had limited myself, I was still pretty active. I worked full–time (had to go on leave), I played tennis (had to stop for a bit), I took singing lessons (I shouldn't have tried that, anyway) and dance. Long story short, I was bored. The bedbound lifestyle was not something I was used to, but I was much too tired to do anything else. So, I decided to start my very first blog, entitled, "Living with Colitis Daily." My blog was a place for me to release my innermost thoughts. It was a place to share my true feelings and what my life is really like, because for much of my life, I was pretty much living a lie. I was hiding my condition due to the fear of embarrassment and judgment. It was at that time that I made my very first IBD friend, Amber. She stumbled upon a YouTube video I had done talking about my surgeries and she reached out. I am so glad that she did! Talking to Amber was like lifting a weight off my shoulders. Not only did Amber have IBD, and not only did she have ulcerative colitis, but also she had the same surgeries (IPAA, J–pouch) that I was having! It felt so good to finally talk to someone who could not just em
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3 comments

  1. Artem says:

    Hi! Thanks for the advices! I met other patients of IAD when I was in gastroenterology. Also, more than a year ago I created my blog about ulcerative colitis and Crohn’s disease, in which I share my experience with people. Maybe in the future I will translate it into English.

  2. Irene says:

    Great article. I am always looking for more info on this topic, especially for my 14-year-old son with Crohn’s. His recent flare hit him hard socially because he was Homebound and missed most of the school year, and the isolation from his friends hit him hard. I think he would relate to your experience, so thanks for sharing it, as well as suggestions.
    I am cautious with FB for his age, but other sites may be better for a teen.

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