Crohn’s & Colitis Foundation Says Data Starting to Move into IBD Plexus

Crohn’s & Colitis Foundation Says Data Starting to Move into IBD Plexus
The Crohn’s & Colitis Foundation of America (CCFA) gave a recent update on its research initiative, the large-scale registry platform called IBD Plexus. IBD News Today participated in the media briefing, which took place during the Advances in Inflammatory Bowel Diseases Clinical & Research Conference (AIBD) in Orlando. IBD Plexus is the first and largest exchange platform on research and information on ulcerative colitis and Crohn’s disease, two inflammatory bowel diseases (IBD). The platform, developed by CCFA, comprises more than 40,000 IBD patients, healthcare providers, and scientists with the goal of transforming IBD research. As Dr. James Lewis, chief scientist for IBD Plexus, noted in the briefing, IBD “affects the daily life of the patient, as well as of their family” and care needs to be improved. It is estimated that 1.6 million people in the U.S. suffer from the disease. IBD Plexus, Dr. Lewis said, is “a research and information exchange platform to accelerate research and transform the care of IBD patients.” It is expected to stimulate collaboration between patients, clinicians, academia and industry, to identify new drug targets and biomarkers, and to improve the quality of care. The platform has several components, including pediatric and adult registries, a biobank, data and analytic platforms, computing, and a centralized analytical lab. Data from existing cohorts are currently being migrated into IBD Plexus. “As the leader in IBD research, CCFA is truly the only organization that can undertake this type of initiative,” said CCFA’s chief scientific officer, Dr. Caren Heller, MD, MBA, in a
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