Joint Study to Assess Effects of COVID-19 on Patients with IBD, Other Autoimmune Conditions

Joint Study to Assess Effects of COVID-19 on Patients with IBD, Other Autoimmune Conditions
The Global Healthy Living Foundation (GHLF) has launched a study to evaluate the impact of the COVID-19 pandemic on patients with Crohn’s disease and ulcerative colitis, among other autoimmune diseases. Known as the Autoimmune COVID-19 Project, the study seeks to understand the concerns and behaviors of patients with autoimmune conditions during the COVID-19 pandemic through a series of surveys. In addition to Crohn’s and ulcerative colitis, people with multiple sclerosis, arthritis, and vasculitis are also invited to take part in the study.  Led by CreakyJoints, GHLF's patient community  for people with arthritis, the project is a joint effort with Creaky Joints' ArthritisPower Research Registry and three other patient research networks — IBD Partners, iConquerMS, and the Vasculitis Patient-Powered Research Network. These four groups are collectively known as the Autoimmune Research Collaborative (ARC), which is focused on carrying out patient-centered research in autoimmune and systemic inflammatory diseases.  “Patient surveys collected at regular intervals will study patients’ respiratory illness symptoms, experiences of COVID-19 testing, modified doctor visits using telehealth, concerns and choices regarding immunosuppressive therapy, and preferred sources of information about COVID-19,” Shilpa Venkatachalam, PhD, associate director of patient-centered research at CreakyJoints and co-principal investigator of ArthritisPower, said in a press release. Participants will be asked to complete surveys, each taking less than 10 minutes to complete, every two weeks in the first two months, and then again at six and 12 months. The Autoimmune COVID-19 Project is being conducted in both English and Spanish, and is targeted for patients living in t
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