U.S. Survey Sheds Light on How Ulcerative Colitis Affects Patients’ Lives

U.S. Survey Sheds Light on How Ulcerative Colitis Affects Patients’ Lives
Two-thirds of ulcerative colitis patients believe the disease affects their personal relationships and half think it impacts their ability to obtain an education or their career, a U.S. survey shows. The UC Narrative Survey, conducted in the fall of 2017, covered 301 patients and 149 gastrointestinal specialists. Patients said they struggle with intimacy, mental health and perceptions of personal failure. They also said that improving patient-physician communication could help them manage their disease better. Sixty-four percent said the disease controlled their lives, with 63 percent saying they were spending an inordinate amount of time in the bathroom. Although two-thirds said they believed their disease to be under control, 39 percent in this category noted that they averaged nine or more trips to the bathroom on their worst day. Sixty-nine percent thought they would be more successful if they didn’t have the disease. And 28 percent said it figured into decisions on whether to adopt a child. Meanwhile, 66 percent of doctors said they believe that more than half their patients accept frequent trips to the bathroom as part of living with the condition. And 53 percent said they think more than half accept cramping and pain as part of the disorder. Sixty-five percent of patients said they felt the disease affected their personal relationships and 50 percent believed it had an impact on their ability to obtain an education or pursue their career. Half of the patients surveyed said they weren't comfortable discussing some topics with their gastroenterologists. Thirty-four percent said they wouldn't want to discuss their mental health, 46 percent would be uncomfortable
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One comment

  1. Janet says:

    I don’t have these conditions but I had a colon resection in the colorectal area and frequently have the same symptoms, as well as lower back pain on occasion in addition to the lower or upper abdominal pain or discomfort. The area where they are connected is smaller than the rest of the colon and sometimes there are sores there. The only groups I see are colon cancer ones, but they don’t regularly talk about the same issues that I have in common with the people from this survey

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