Is It Ever Possible to Stop Thinking About Your IBD?

Is It Ever Possible to Stop Thinking About Your IBD?
I have a friend who is fairly new to the IBD world. She was diagnosed with ulcerative colitis last year. She's had a hard course of it, with four hospitalizations, two bouts of C. diff., and two different biologics. She lost 30 pounds at one point and now is up more than 10 pounds from her comfortable weight from all the steroids. Last week, she said her hope was that to reach a point where she would not think about her ulcerative colitis every day. I hesitated when she said that, unsure how to answer. The fact is, this is a chronic disease that never lets up. There may be periods where you feel well, but in my experience, you don't ever really forget you have it. In my first few years with Crohn's disease, I had a pretty easy time, rarely getting sick. So, I didn't think about it that much, except for the huge jar of Asacol that sat on my nightstand, reminding me to take the pills each day to stave off attacks. But I didn't think about it in terms of my everyday life. I wan't worried I would feel sick or not be able to do something. I knew that if I got sick, my doctor would prescribe a drug like Flagyl, which was what worked on my flare-ups at the time, and I would be better in a few days.  Occasionally I would panic if an attack lasted too long. But that was back then. Over the past five years or so, the disease has run rampant over all the systems of my body — my digestive system, my skin, my joints. Pain or discomfort, at least, are daily companions, and I think about them all the time. Even on a day I feel good, I'm amazed that I feel that good — so Crohn's even shows up in my mind when it's unnecessary. Even when I am able to have a day free of Crohn's complications, I still think about it. It's not usually the first thing I think about when
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One comment

  1. Tom says:

    I started with a mild case of U.C. and even then, it was always on my mind. Now it’s much worse, so I even dream about it. Your friend has a great goal, I wish her luck.

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