Crohn’s & Colitis Foundation of America Partners Awarded $1 Million by Patient–Centered Outcomes Research Institute

Crohn’s & Colitis Foundation of America Partners Awarded $1 Million by Patient–Centered Outcomes Research Institute
shutterstock_95538487The CCFA Partners project, which was launched by the non-profit organization Crohn's & Colitis Foundation of America (CCFA) and the University of North Carolina School of Medicine (UNC), has been awarded a $1 million grant from the Patient–Centered Outcomes Research Institute (PCORI). The portal is a research partnership designed to connect patients who suffer from inflammatory bowel diseases (IBD) with the scientific community. PCORI granted the $1 million award to the project to help enable its development and expansion, and included it in the National Patient-Centered Clinical Research Network (PCORnet). There are currently 29 projects in PCORnet, which is a data network designed to accelerate efficiency and usability of patient–centered comparative effectiveness research (CER). “CCFA Partners builds and strengthens alliances between the IBD patient and scientific communities,” said the scientific director of the initiative, Michael Kappelman, MD, MPH, who is an associate professor at UNC. “We’re empowering patients to be more directly involved in all aspects of research, including the generation of and in
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