Stones in a Bucket: Adapting to Life with Crohn’s

Stones in a Bucket: Adapting to Life with Crohn’s
For the past month or so, I’ve seen memes referencing being a spoonie. I’m either old or just out of touch with what’s trending on social media because I had to Google it. I discovered that a spoonie is someone who lives with a chronic illness. The term comes from a blog written by lupus patient Christine Miserandino. Miserandino created "The Spoon Theory" to help her friend understand what it is like to live with a chronic illness. The theory maintains that the chronically ill start each day with a limited amount of energy, which is represented by spoons. Each activity that a healthy person does with no forethought — such as getting dressed and working at a computer — costs someone living with a chronic disease one or more spoons, depending on the amount of energy expended to complete the task. Miserandino explained that the chronically ill spend their entire day worrying about running out of spoons. They must carefully plan every task and every action to make their spoons last. The analogy about the fatigue and pain associated with illness touched others living with a chronic disease, and followers of her theory began referring to themselves as spoonies. I’ve had more than my share of days when I was too fatigued to do everything that I needed to do. But I never contemplated my spoons until after I read Miserandino’s blog. I may have a limited number of spoons, but with my Type A personality and Asian work ethic, allowing Crohn’s disease to dictate my life is not an option. I would never allow myself to run out of spoons. Rather than surrender a spoon, I power through the day. Only after I check off everything on my to-do list do I throw all my spoons into a pile and collapse in an exhausted heap. I don’t know if the theory fits my
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