The Frustrations of IBD-related Insomnia and Fatigue

The Frustrations of IBD-related Insomnia and Fatigue
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IBD can affect more than just your gastrointestinal tract. Fatigue is a common debilitating symptom that can occur even when IBD is managed well.

Beyond my daily Crohn’s-related pains, I struggle with severe fatigue, which is not just your everyday “tired” feeling. No amount of sleep or rest can phase my fatigue. I go to bed exhausted. I wake up just as tired. I drag through the day. The smallest of tasks leave me feeling as if I ran a 5k that morning, but only after climbing Mount Fuji and walking the Appalachian Trail, too. My body feels worn out, even after small tasks like showering or driving to work. I tell ya, it’s exhausting.

Usually, I fight through with unmentionable amounts of caffeine — insert unsolicited and unwelcome chastising here — but my doctors think that’s fine, especially since it combats my migraines, too.

Many things can cause fatigue with Crohn’s disease or ulcerative colitis, including the following:

Steroids, such as prednisone, are notorious for causing insomnia and abnormal sleep patterns. I made the mistake of taking my steroids at night when I started them. After discussing insomnia and my daily routine with my doctors, we realized that I should take them in the morning to prevent a worsening of my insomnia symptoms.

Night sweats are the worst. I wake up sweaty and chilled, with urgency and tenesmus, all of which affect my sleep and my bowels.

Pain. All who have IBD know pain. Between abdominal pain, joint pain, harsh bowel movements, and inflammation, there are many ways that Crohn’s disease pain can occur, leading to fatigue for the patient. My fibromyalgia-related allodynia and Crohn’s disease pain both flare from fatigue, leading to even more fatigue.

Internal battles against inflammation don’t leave your body much time to “relax.” It is constantly stressing and laboring toward IBD management and body healing.

Anemia and vitamin deficiencies. When the body is missing essential nutrients and vitamins, the body reacts. A lack of iron (leading to anemia) is a major contributor to fatigue — blood loss is never good for the body.

Medications to help sleepless nights include melatonin and mirtazapine. Melatonin alone can be beneficial, but I take both, prescribed by my doctor. Melatonin is a supplement and mirtazapine is a prescription medication. I would recommend seeing your doctor and not self-prescribing, as withdrawal from mirtazapine can make symptoms worse, and people often underdose or overdose with melatonin.

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Note: IBD News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of IBD News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to IBD.

Crohn’s disease warrior, Navy veteran, communication and journalism graduate, cosmetologist and phlebotomist. I am a fur mom of one dog, my child, Bilbo Baggins. I enjoy sharing my journey with other invisible illness warriors through IBD News and also my personal blog. I live each day trying to find the positive because, for me, it could be worse. I hope you’ll allow me to share my experiences and I happily accept any and all feedback, questions, and information. Thank you for reading my patient perspective!
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Crohn’s disease warrior, Navy veteran, communication and journalism graduate, cosmetologist and phlebotomist. I am a fur mom of one dog, my child, Bilbo Baggins. I enjoy sharing my journey with other invisible illness warriors through IBD News and also my personal blog. I live each day trying to find the positive because, for me, it could be worse. I hope you’ll allow me to share my experiences and I happily accept any and all feedback, questions, and information. Thank you for reading my patient perspective!

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