Crohn’s Disease Questions: First in a Series

Crohn’s Disease Questions: First in a Series
Editor’s note: First in a series, “Crohn’s Disease Questions,” Mary Horsley answers some of the most commonly asked questions about IBD. With chronic illness comes questions of all kinds from family members, friends, acquaintances, and sometimes, even strangers. These questions come from people trying to figure out their limitations, gain ideas about their disease, understand others' suffering, or find out how patients manage and live with IBD. I have been asked some of the same questions over and over. In this series, I will try to answer some of these questions with information about IBD and Crohn’s disease and insight from my experiences and patient perspective. I will do my best to answer: Basic questions: These questions, in my view, are usually genuine and come with a desire to understand. Sometimes we have to discuss the basics about our IBD, and we may have to repeat these for the rest of our lives. I find these questions to be the important ones. What causes it and is there a cure? What exactly is Crohn’s disease? Is it contagious? When will you get better? Why are you always sick? What are your symptoms? What is a flare? How long will it last? Food questions: The food questions and suggestions come a dime a dozen. With each basic Crohn’s question that comes my way, I usually get double the number of food questions and concerns. What can you eat? Is it an allergy? Is it from gluten or is it your diet? Should you be eating this or can you eat or drink that? Why don’t you eat more? Eat less? How can you eat that? Can’t you just splurge for once? Do we have to get food special for you? Suggestion questions: Have you tried (fill in the blank)? Sadly, I have had plenty of these "suggestions," many of them irresponsib
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  1. Emily Thompson says:

    I’ve just started referring people to Wikipedia generally. If it’s on Wikipedia, it must be a thing.

    So the logic goes.

    • Mary Horsley says:

      Wikipedia, although it may have some correct information, is not considered a valid source for most schools or news outlets, it cannot always be trusted. I can add information, you can add information, anyone and everyone can add information, and that being said, that means information is not always correct. I like to give people real patient perspective, if that makes sense.

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