What It’s Like Living with Someone with Crohn’s Disease, Part 2

What It’s Like Living with Someone with Crohn’s Disease, Part 2
Last week, you read my interview with my husband about what my illness has been like for him. This week, I interviewed my 23-year-old daughter, who comes with her own unique viewpoint. Do you remember me before I was diagnosed? If so, what was it like, compared to after? I honestly don't remember what it was like before you were diagnosed. (My comment: My daughter was just 6 when I was diagnosed, and I had spent almost an entire year in bed before getting an accurate diagnosis. It's not surprising that she doesn't remember me healthy.) When did you realize that I had an illness that most people don't ever have? I don't really remember realizing this, either. I think for a long time I didn't know there was anything different happening because it was what I was used to. (My comment: It's interesting how children accept the circumstances of their lives and don't realize their family dynamics are different than others'. This goes not only for Crohn's, but for all kinds of family issues.) What has been the hardest thing about me having this disease? It has been really hard to watch you feel pain and know there isn't anything I can do, and accepting that it won't get better. Also, watching you miss out on things you wanted to do, like work and more active things with me and my sister. Watching the medication you have to take to help with Crohn's affect you badly all the time, and treatments you have to endure. (My comment: I think sometimes I've been less sensitive to this than I should have been. I remember one time I was hospitalized overnight — I'd had a bad reaction to some medication that the doctors thought briefly was a stroke — and I came home the next day. I was so worried about my daughter's experience with this that I sent her to
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  1. Paul Tarantino says:

    I think your article was good. I also think you should have gone outside your family interviewing others in this situation such as friends, co-workers, etc.. That may have given a larger view of point and a better perspective.

    • Sheryl says:


      Thank you for your honest perspective.
      I am a mother of 4 young children all with Crohns.

      I would be very interested to hear from anyone you may know who has several children with crohns and how it affects their children and of course the impact it has on their family.

      Thank you

      • Judy Walters says:

        I can’t imagine what you’re going through. 4 kids and they ALL have Crohns and all young? Does it run in your family?

        It’s hard on the kids, but it’s also hard on you, the caretaker. Make sure you get enough rest and eat well and stay on top of your own health so you can be there for them.

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