What Not to Say to People Who Are Grieving

What Not to Say to People Who Are Grieving
In another part of my life, far, far, away from Crohn's disease, I'm experiencing grief of a sort, and I am working through it. (Don't worry; no one has died.) With this grief comes frustration from people who know the situation, but still say the wrong things — the opposite of what I want or need to hear. Living through Crohn's is sort of like living through grief — grieving the life that I could, and should, have led, grieving the fact that I'm not a healthy person, grieving the abnormal way I must live. From eating strangely to extreme exhaustion
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5 comments

  1. Paul Tarantino says:

    I resigned to telling only close friends and those I have working relationships with I have Crohn’s that way I don’t have to hear uneducated remarks. I do educate those who really want to understand the disease. Most people mean well.

  2. Doug Lusty says:

    I am not the stereotypical Crohn’s body type. I’m male, 6’3″ and 250 lbs. When I have had really bad flares people have congratulated me on losing weight! That is the last thing I want to hear when I can’t eat.

  3. Fi Ashton says:

    If I have one more person tell me they have an aunt/sister/brother-in-law/cousin 22 times removed that has Crohns so they “definitely” understand followed by an ill informed comment, I may scream.
    Also, my other pet peeve is people comparing it to their IBS. Why, oh why , did the medical profession choose to name it IBD? It only encourages confusion & misunderstanding.

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