What Not to Say to People Who Are Grieving

What Not to Say to People Who Are Grieving
In another part of my life, far, far, away from Crohn's disease, I'm experiencing grief of a sort, and I am working through it. (Don't worry; no one has died.) With this grief comes frustration from people who know the situation, but still say the wrong things — the opposite of what I want or need to hear. Living through Crohn's is sort of like living through grief — grieving the life that I could, and should, have led, grieving the fact that I'm not a healthy person, grieving the abnormal way I must live. From eating strangely to extreme exhaustion that I must give in to at any time, to frequent colonoscopies, shots in my stomach every few weeks, and repeatedly going for blood work, there's a lot there to deal with. Following are some of the wrong things people say to me. When I'm done with my list, I hope you'll add some of the wrong things people have said to you. "At least you're not going to die." Is that supposed to make me feel better? Sure, I'm really sick, but at least I'm not on my deathbed? (By the way, people have actually died from complications due to Crohn's disease.) "But you're so lucky to be thin!" Yeah, I guess it's great that I get to wear small clothing sizes. I can't always keep up my weight because having Crohn's means I often don't feel like eating, I get full fast, and I go to the bathroom all of the time. "Oh, I thought you were going to tell me you have cancer." I'm sorry I disappointed you with my boring illness. "There's not a cure? There has got to be a cure." Um, no, not every disease has a cure. But thanks for telling me that I don't know enough about my illness to know there actually is a cure that I've overlooked. "My best friend/cousin/boss went on a diet where he/she removed [XYZ], or only ate [XYZ]
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  1. Paul Tarantino says:

    I resigned to telling only close friends and those I have working relationships with I have Crohn’s that way I don’t have to hear uneducated remarks. I do educate those who really want to understand the disease. Most people mean well.

  2. Doug Lusty says:

    I am not the stereotypical Crohn’s body type. I’m male, 6’3″ and 250 lbs. When I have had really bad flares people have congratulated me on losing weight! That is the last thing I want to hear when I can’t eat.

  3. Fi Ashton says:

    If I have one more person tell me they have an aunt/sister/brother-in-law/cousin 22 times removed that has Crohns so they “definitely” understand followed by an ill informed comment, I may scream.
    Also, my other pet peeve is people comparing it to their IBS. Why, oh why , did the medical profession choose to name it IBD? It only encourages confusion & misunderstanding.

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