Crohn’s Disease: ‘Beyond the Bathroom’ Series, Part One

Crohn’s Disease: ‘Beyond the Bathroom’ Series, Part One
Editor’s note: This is the first in a series of columns by Mary Horsley about IBD-related symptoms that are "Beyond the Bathroom." Bowel diseases like Crohn's and ulcerative colitis often are just assumed as being "bathroom diseases," or all about the poop. Usually when IBD patients mention their diagnosis, the first assumption is that we suffer only when in the restroom. It is commonly believed that our problems come only as bathroom-related issues, and that once we "go" we are okay. In my experience, a lot of times "outsiders" think the only issues I suffer are in the restroom. This cannot be further from the truth, as many IBD patients can tell you, it is SO MUCH MORE than just a bathroom illness. With any diagnosis, there are a number of ways it will affect your body. And with any diagnosis, each person will suffer symptoms individually. Some will experience more problems than others, and just because one person has a symptom, does not mean all IBD warriors suffer with the same. With an autoimmune disease like Crohn's, problems come in a lot of different ways. Some are manageable, others still questionable, but none are 100% curable considering there is no known cure for Crohn's or colitis. Having suffered myself for more than three years now, I have quickly learned there are quite a few symptoms and issues that come outside of the restroom. For my third series with IBD News Today, the theme and focus will be on Crohn's disease symptoms that are "Beyond the Bathroom." I have suffered a number of these problems, and they are not as widely known as the bathroom symptoms. In this series I'll discuss
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  1. Julie E. says:

    Absolutely can relate. I’ve had Crohn’s disease for about 11 years. I’ve experienced the skin issue, chronic joint pain, major fatigue, depression and anxiety, memory issues, weight going up and down (need several sizes of clothes) I do sleep, but it’s not a very restful sleep (I use some sleep aids to help) I am lucky that I have a great Doctor, and he’s really helped me keep things from getting much worse. Unfortunately, I seem to have side effects from every damn drug I try. I can’t even take the prednisone much anymore, only very low doses for a few days. My skin reacts really badly to almost every drug I take. I now have Rosacea and it aggravates my psoriasis too. It definitely is a day to day struggle

    • Mary Horsley says:

      I am so sorry that you can relate and you know this struggle. This disease truly takes a toll on its victims, both mind and body, and everything it can get its grasp on. So crappy. Pun intended. I hope for better days for the both of us and the rest of the Crohnies! *hugs* – Mary

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