A Crohn’s Setback Leaves Her Wondering About the Future

A Crohn’s Setback Leaves Her Wondering About the Future
So, I was all the way down to a 5 mg dose of prednisone last week and the inevitable happened; I started feeling sick. I had been feeling pretty good since my late December flare-up, other than some bad muscle weakness and joint pain, which I knew I could be from Crohn’s or the medication itself.

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  1. Anna says:

    I’m sorry you’re having such a hard time.It sounds like your doctor’s trying to help but without insurance approval, his hands are tied. Perhaps, reading Breaking the Vicious Cycle by Elaine Gottschall might help. Also, Dr. Suskind from Seattle Children’s Hospital is using her methods in studies utilizing the SCD diet for pediatric IBD patients. Maybe your Dr. could find out if there are adult studies through the gastroenterology department at the University of Washington you might participate in. Also, if your Dr considers Humira as a possible treatment option, Abbvie Co. has a patient assistance program. I hope you find something that helps.

    • Judy Walters says:

      Hi Anna:

      Thank you for your comments. My doctor is actually on the forefront of all the trials — he has contacts at the NIH and pharmaceutical companies — and works in a research hospital where there he starts his own trials sometimes. 🙂 So I am in a good place in getting the newest medications and treatments available to me.

      Also, I’ve already tried Humira.

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