Crohn’s and the Prednisone Taper: Love/Hate Relationship Continues

Crohn’s and the Prednisone Taper: Love/Hate Relationship Continues
If you've ever been on Prednisone, you know it is a love/hate kind of thing. I love it when I'm feeling so awful that I can't get out of bed, when I want to die, or at least not live in the state I'm in. I'm also thankful for it it when I can't function — except to run to the bathroom, of course — and I'm grateful for it when, on the third or fourth day of taking it, I start feeling better. I can eat again. I'm not in pain. That horrible weakness all over my body goes away. I am rejoicing in prednisone happiness. I eagerly swallow it in the morning, knowing that each day I take it I'm going to improve and feel more myself. Soon I will want to eat regular meals again. I will want to leave the house. I will be able to sleep through the night. Yay, prednisone! I started back on prednisone at the end of December, after getting a massive flare-up, as I talked about in an earlier column. I started at 40 milligrams, which is a typical starting dose for me when I'm feeling that bad. I've been doing the usual ever since — two weeks on 40 mgs, one week on 30 mgs, one week on 2o mgs, and now I've just started a week of 15 mgs. Then I'll go to 12.5, 10, 7.5, 5, 2.5, and be done. At least that's the plan. I'm loving/hating prednisone right now. I know it saves me — literally — when I'm feeling awful, but I also know that it's horribly bad for me. My face is really swollen right now, I've gained a few pounds, and those are just the short-term side effects. I'm always aware of how it creeps up my blood pressure, how I was diagnosed with osteoporosis at just 43, how I get these strange muscle aches in my legs after I've been using it a while, how my mood can go from go-with-the-flow to agitated and depressed and on edge. I noticed when I tapered to 20 mgs last week
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  1. Kim S. says:

    I was diagnosed with Crohns 21 years ago and i have been getting lots of prednisone myself so i can relate. Unfortunatly for me though, they didnt give me calcium until after my spine collapsed. My point being: make sure you ask your doctor about side effects and how to treat them, even they might forget small but really important details.

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