How Much Do You Tell Others About Your Chronic Illness?

How Much Do You Tell Others About Your Chronic Illness?
crohn's corner I've had this conversation with fellow sufferers of chronic disease: How much do you tell others about the disease? What do you tell? When do you tell? Whom do you tell? I'm very open about the fact that I have Crohn's disease. I share it on my Facebook page; I share it with friends, with family. Everyone who knows me knows I have the illness. But what I'm not always comfortable with sharing is all of the flare-up details, or how the disease works, or the medications I'm on. That's mostly because people don't seem to want to believe me. For some reason, those details feel more private, or challenge me more. At a New Year's gathering, most of the people were close friends who know I'm sick. One woman did not. I was happy to share that I have Crohn's.  It came up after a friend mistakenly referenced that I have diverticulitis, which is not the same as Crohn's, but because it is in the intestine, is often assumed to be related or even the same. This other woman overheard the comment and wanted to know what we were talking about. I explained that I have Crohn's and gave a brief explanation about the illness. "But there must be some medicine for it," she said. I explained that there are lots of medications, but most don't really work for me, or only work briefly before puttering out. I also explained that for some people, medication can help, and that it's all very individual and hard to manage. "But that doesn't make sense," she said, incredulous that there was a disease where there wasn't a cure, or at least some easy
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