When People Don’t Understand ‘The Whole Crohn’s Thing’

When People Don’t Understand ‘The Whole Crohn’s Thing’
So, last week I shared with a group of women — some of whom I know very well, others I don’t know at all — the whole Crohn’s thing. (I don’t know what else to call it.)  Most were supportive, either by asking appropriate questions or wishing me well and hoping that I would get

Knowledge is power when living with IBD.

Get access to the web’s leading IBD news & insights for as little as 16¢/day.
Subscribe or to access all post and page content.


  1. Shmuel says:

    I have had crohns since I was 21 years old, that is for ten years now.

    While that lady was insensitive, and you may be unable to control crohns with stress alone, in my opinion there is definitely an emotional component to all disease, including crohns.

    Learning to tune into spiritual and emotional wellbeing can be a key ingredient in living a healthy lifestyle. Autoimmune disorders are not freak accidents like being hit by accidents car. There are many components that can affect the overall well-being such accidents diet, sleep, exercise, stress and environment. These factors can have a powerful effect on most diseases’ development and treatment.

    Wishing you good health,


  2. Lois Lightman says:

    I am 82 yrs old. I have had Crohns Disease since I was in my twenties. I have had 4 surgeries. The disease is back. I have high blood pressure – heart disease – COPD – & asthma. I am too high a risk for surgery. I am now suffering.

  3. kay says:

    i have had crohns for 30 years, many operations and permanent ileostomy.
    As stated above Crohn’s is an autoimmune disease it is NOT caused by stress , Stress doesn’t help but it sure isnt the cause.

  4. Andrea says:

    I have ulcerative colitis, I have had my entire colon removed. I have had many issues with people in my life not understanding. I do think that we (people with IBD) are more sensitive, but not because we are weak, but because we are in tune with our bodies. I have been lucky enough to find some great doctors, after being misdiagnosed for 5 years. I am sure I would have had the same response as you at first. But, over the 15 years that I have dealt with this, my father has bought me countless self help books, in his attempt to help me. There is a very interesting one called “When the Body Says No”. It talks about the mind body connection, you may like it. It took me years to read the books from my father, because I was offended that he thought I needed them, much like you described this lady. It sounds like she didn’t mean to be hurtful, but that she thought that she understood because of her husband. But, as I am sure you fully know, they (healthy people) will never truly understand what people with IBD go through. I hope that you are doing well and if you ever want to talk feel free to send me a message

  5. Andy says:

    I was diagnosed with Crohn’s 30 yrs ago aged 23 and I was really ill and was in hospital for 5 weeks ,I’ve had numerous hospital stays over the years but fortunately I’ve had long periods of remission in-between so I count myself lucky,but on 27th December 2010 my world was turned upside down when I lost my 16 yr old daughter in a car accident also also her boyfriend and another friend died and as you can imagine the emotional stress I went through then was more than most, but no flare up Crohn’s I was symptom free for 6 years up to last year when I had another flare up and had a bowel resection , so no one will ever convince me that Crohn’s is triggered by emotional stress . The only person in my family who has Crohn’s is a cousin of my mother,strange.

Leave a Comment

Your email address will not be published. Required fields are marked *