Ulcerative Colitis Patients Appear More Worried About IBD Complications Than Treatment Side Effects

Ulcerative Colitis Patients Appear More Worried About IBD Complications Than Treatment Side Effects
People with ulcerative colitis (UC) are more concerned about the long-term complications of their inflammatory bowel disease (IBD) than they are about possible side effects from its treatment, according to an online survey of UC patients in the U.S. and Australia. The study drawn from the survey, “Patients with Ulcerative Colitis Are More Concerned About Complications of Their Disease than Side Effects of Medications,” was published in the journal Inflammatory Bowel Diseases. “Patients with ulcerative colitis are often faced with complex decisions regarding treatment of their disease. Due to concerns about starting immune suppressant therapy, a significant amount of time is spent in the clinic reviewing side effects of immunomodulators or biologics,” Corey A. Siegel, MD, MS, the study's lead author from Dartmouth-Hitchcock Inflammatory Bowel Disease Center in New Hampshire, said in a press release. “However, our study showed that patients are actually more concerned about the long-term effects of their disease than adverse events of therapy.” Researchers undertook the web-based survey to better understand those aspects of the disease and its management most worrisome to patients, and preferences regarding how treatment options are disclosed. In addition to standard closed-response questions, the survey also included audio clips with respondents showing the strength of  their agreement or disagreement using moment-to-moment affect-trace methodology. Standard quantitative analysis was used on survey results, and cluster analysis was performed on the affect-trace responses. A total of 460 people with UC responded to the survey, 370 (80 percent) from 45 states in the U.S. and 90 from Australia. Demographically, patients from
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