CCFA Partners Awarded $1.6 Million to Further Expand Patient-Powered Research Network

CCFA Partners Awarded $1.6 Million to Further Expand Patient-Powered Research Network
Through a partnership with the University of North Carolina School of Medicine, the Crohn's & Colitis Foundation of America (CCFA) announced that it is the proud recipient of a research grant worth $1.6 million from the Patient-Centered Outcomes Research Institute (PCORI). The funding will go toward efforts to involve more inflammatory bowel disease (IBD) patients in the Foundation's expansion of the CCFA Partners Patient-Powered Research Network over the next 3 years. "We are very pleased that PCORI is providing additional funding to further expand CCFA Partners and how we engage with more patients," said Caren Heller, MD, MBA, chief scientific officer for CCFA. "PCORI's continued investment in this program demonstrates the important role patients play in contributing to and helping to shape the standard of IBD research." In 2014, PCORI pledged $1 million to CCFA Partners to expand its health data network, allowing it to join other 33 individual networks in the country that comprise the National Patient-Centered Clinical Research Network (PCORnet), a nationwide information network that facilitates more efficient use of patient-centered comparative effectiveness research (CER). This network makes a difference in the ease and speed at which researchers are able to begin and carry out new studies. "As its capacities are grown, CCFA Partners will bring new opportunities to empower patients and their families to become citizen scientists—active and informed participants in their medical care," said the study's principal investigator, Michael Kappelman, MD, MPH, an associate professor of pediatrics at UNC. "By sharing personal experiences and
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