It’s Crohn’s and Colitis Awareness Week, So Let’s Talk About IBD

It’s Crohn’s and Colitis Awareness Week, So Let’s Talk About IBD
Crohn's and Colitis Awareness Week - It Could Be Worse To many people across the world, Crohn's disease and ulcerative colitis bring everyday battles from a disease that has no cure. Inflammatory bowel diseases (IBD) play a major part in the day-to-day lives of so many. I know my world is turned upside down daily by Crohn's disease. To most people, IBD is an unheard of invisible illness. I had no idea what Crohn's disease was when I first heard about it. Yes, there are many bathroom aspects, but it is much more than that, as it can affect you both physically and emotionally. Crohn's disease and ulcerative colitis affect the digestive system, leaving sufferers with severe pain, weight loss, bleeding, and diarrhea. Even with its early signs and symptoms, the disease affects a patient comprehensively. It causes many symptoms that are unseen by those who cannot relate, hence its invisible aspect. Ulcerative colitis is similar, attacking the colon or large intestine, and affecting everything from the bones to the kidneys, and from the liver to the skin. Both can affect the joints, the eyes, and the mouth. The entire body can be affected, top to bottom. This is not just a bathroom disease. Numerous medications are used to manage and suppress Crohn's and c
Subscribe or to access all post and page content.

One comment

  1. Rose says:

    Hello!

    PLEASE HELP ME!!!!!!!
    I am 4+ years into waiting for my diagnosis. Mainly because I just got tired. It all started with chronic abscesses, recurring every month on average. For the first 15ish, I had them packed and drained. With me being in college at the time, I found it very difficult to keep going through this process without getting to the root of the problem. I started seeing other doctors and received all types of possible diagnoses from: infectious diseases, hydradenitis, chronic acne of the buttocks, and so on. As for my regular doctor that repeatedly packed and drained my abscesses and prescribed antibiotics… well he ran out of options as well, so he prescribed me a medication that is used to treat herpes. My mom, being the doctor she is, had a fit. She asked for the medical necessity of this medication. The doctor said that he had exhausted all other treatments and this was next in line.

    Needless to say, I never saw him again. AND THEN, the IBD symptoms set in. I realized I had a real problem when I drank a beer one night, and the next morning I woke up to severe abdominal cramping, diarrhea (with blood, fat and mucus scattered in the toilet bowl – sorry for the details), and it did not relent. My mom knew at that time that I had Crohns. She took me to a gastroenterologist, and I got my first colonoscopy… and nothing. No inflammation, no tearing, no mucus…. nothing. Of course, I didnt have any symptoms at the time of the colonoscopy. I was told to return for further testing. I never did.

    Fast forward to the second colonoscopy a year later (2016), and you guessed it… same thing. By then, I was fed up and decided to live life carefree as a normal 23 year old. A couple flare-ups wouldnt hurt right? WRONG!

    I am currently writing you out of desperation because I neglected my health. Ive never been big on medication, partly because everything I was given had adverse side effects. I have also been eating whatever, whenever. Moreover, I have had so many abscesses left untreated that I think they have all interconnected immediately beneath my skin. I get them almost every week now. I am currently undergoing a very serious flare-up, all the gross stuff I mentioned earlier.. MULTIPLIED BY TEN. Lately, I’m so afraid of this “stuff” that I hardly eat. As far as treatment… I don’t know where to start – obviously with getting a diagnosis, but I can’t sit through another pointless colonoscopy. The only thing that seems to help is smoking marijuana frequently, but if I skip a smoke session, may God help me. Also, it is illegal in GA.

    So my question for you is, what’s next in the process of receiving a diagnosis? This is very urgent so I do not want to go through the numerous rounds of “ruling everything else out”. I know that there is no definitive test for CD, but there has to be something close. I recently came across your blog and you were very informative and held nothing back, so I thought I would ask.

    Also, do you notice a time of day that your symptoms worsen? Mine are always terrible in the morning and I have never understood why.

    Thanks so much for your time. Even if I dont receive a response, your stories have helped me realize that it is time to take control of my life and my health.

Leave a Comment

Your email address will not be published. Required fields are marked *